Physical Therapy - I can't express how much I am in love with physical therapy. If I could force one thing on anyone who has Lyme it would be physical therapy. It's been going extremely well and I am noticing a big difference with my strength, while small I still feel so much better when I go.
Neurologist - I traveled all the way to Tucson to see a well known Neurologist whom a family member sees. I allowed them to talk me into the visit knowing they were mostly attempting to lure me home for a visit. This was my third Neurologist and I braced myself for the same results I had gotten from the others. To my surprise this doctor actually apologized genuinely for his colleges. I was extremely impressed with his thought process as together we developed a plan to move forward. I learned a great deal from him which is always what I expect from my "doctor team." He made the cut and I like him.
The interesting thing is that we started me on Alzheimer medications. Yes, I'm 27 and I am taking these drugs and in all honesty, they are changing my daily life dramatically. The new drugs are Aricept and Nuvigil. The first for memory and the second for brain alertness.
I will say here, that I was not aware of how bad I was prior to taking the drugs. I knew things were not working properly but I thought I was at least functioning. This really was not the case. Having suddenly received a jump on my brain activity the difference between functioning with the drugs then without is like swimming through mud and then suddenly being in clear water. When I'm not on Nuvigil (as it is an "as needed" drug for me) I truly can not process anything and I can tell that I become lucid and distant from my environment making me solely focus only on what is happening rather then being a part of what is happening.
This new change is beyond exciting for me. It has given me a glimpse of where I am supposed to be brain wise and helped me grasp the love of life I had lost which is a true part of who I am. Life as I was, is worth the continued battle. These drugs have reminded me to not give into this lame feeling of fatigue. I will not stop until I have my fight back in me!!
Activity Level - I am now in a Yoga class on Wednesday nights. I have not been able to be consistent enough with my energy level to be comfortable committing to a class in the past but this past week I was able to confidently sign up knowing that I have been balanced enough in my schedule and understand my energy levels enough to be able to consistently attend. I feel that Yoga is a good class to start out with. Recovery is such a slow slow process.
I'm swimming periodically through the week but I have allowed it to be more of a reward to myself when my body feels like it can give a little more. It has not become a routine yet, however it is about two - three times per week.
Walking has subsided a little as my days at work have become more demanding and lengthy. Working Monday through Friday has become a norm for me and I have been able to finish the week out as strong as I started it consistently for the past three weeks. This new schedule at work has been a positive step in the right direction as I begin to slowly climb out of the painful survival mode of life.
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Read your confession... I've been slipping a little too. Feels good, but the results don't. Still, it's good to live a little.
ReplyDeleteInteresting news about your brain drugs. I may have to get me some of those.
Keep at it.
/Chronic
PS. Typo in the title of this post :)
WOW! I'm with CT, those brain drugs sound AWESOME! I loved your analogy of swimming through mud as opposed to clear water. I wonder if I talk to my dr. about the meds mentioned if I could get some too...without having to visit a neurologist first. I wonder how they test for Alzheimers. Maybe I should get tested for that and then they'll see there's a problem and then I could be put on brain drugs. I want that part to come back...I haven't had it since I was in about 1st grade, and frankly...I MISS IT! I'm so happy to hear you're doing so much better. Sorry I've been out of touch lately.
ReplyDeleteThanks CT for pointing out my typo! It's one thing if it's hidden among the words and body of the post another all together to have it in the title!
ReplyDeleteSarah, it's ok, we've both been out of touch. ;) The thing with doctors that i've noticed is that you have to make them beleive that it's their idea. :P It can't hurt to try it out but I wasn't really tested for it, the doctor I saw just plain believed me!! Said that patience don't make up those types of challenges. Good luck approaching the subject with your doctor.
The meds really have started to make a big difference, but they come with all the other baggage too. Like will I be able to get off of them? Will I become dependent on them for my brain to function? I'm really playing with something I otherwise was not wanting to play with but at the moment, I'm just enjoying it for what it is. A blessing!! In a couple months I'm going to have some difficult choices to make concerning them...
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