As my symptoms continued to get worse and new things appeared such as joint pain and more brain fog my doctor and I decided to do another treatment of IV antibiotics in hopes that one more time around might help me out.
It appears at this time that I am having the same interaction with the IV as I was with the oral antibiotics. I get worse on them, get off of them, get worse off them and then get on them again. My good days are fewer and farther between each other now that I am on the IV again.
I have decided to try and continue working through this treatment cycle because if I stay at home I don't know if I'll come out again. Last time I had a hard time attempting to reintroduce myself to the outside world after being inside for over two months. The other reason for me to try and work through this one is because my boss is not all that comfortable with me being out... sigh...
Picc line Placement:
Last Friday morning I went in and had the pick line placed. The tech did it this time and I have to suggest to anyone to always ask for the Doctor. Last time I had it placed the doctor did it without issue. This time, he had to stick me twice (when I say stick I mean they cut me open and attempted to place the line but "lost" my vain) The doctor was called in and he did it without issue. Skip the tech and go to the doctor.
Monday morning I noticed that my arm was itching a lot. I called the hospital where they placed it and told them about my reaction. My arm was red and swollen and very itchy. They got an appointment for me to come in first thing on Tuesday.
Tuesday morning, they looked at my arm and decided that I had developed an allergic reaction to the adhesive. They decided that they had to suture it into my arm for placement purposes. THAT HURT! Actually it's now Thursday and it still hurts. They placed a hypo allergenic cover over it which was supposed to help.
Wednesday morning, I went to get the dressing changed at my doctors office and they found that my arm had really reacted. It was very red and open sores had developed from the rash. It still is in the same condition despite my care. I mentioned to the doctor that I was having heart palpitations which I had not felt in my last treatment. He kinda freaked out and sent me to the ER with a slip asking them to monitor me and check the placement of the picc line. Needless, to say they had to move it. (ALWAYS ASK FOR THE DOCTOR TO PLACE YOUR PICC LINE)
Friday morning, (a week after placement of picc line) I called my doctors office to inform them that my arm had gotten to be more red and my skin had started to ooze. (sorry for the disgusting description) They asked me to come in right away. Once they saw my arm they had to take off the Hypo-allergenic adhesive protection thing and replace it with just gauze. They are a little freaked about just gauze and have instructed me to visit them once every three days to have it changed. I'm so very lucky my boss is so forgiving of my lack of appearance at work on time.
Saturday night, (a week and one day after picc line treatment) after dinner I started to notice that i was itching in odd places. I went to the restroom and discovered that I had little bug bites on the my legs and on my face. Later that night I found that i had them all over my body. They itched and burned and after consulting my nurse and doctor they decided that I had developed an allergic reaction to the medication. I awoke Sunday morning in the same condition and a little worse then the night before. This time around I can't seem to get a brake.
I've had a lot more complications. I am still very grateful that my doctor is willing to treat me. My insurance refuses to pay for it but honestly, I'm not better and I am extremely grateful to have had the help and understanding from my doctor. I'm lucky compared to others.
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Lyme borreliosis

Structure Of Bacteria That Causes Lyme Disease Detailed In 3D
Ambor....There are alot of us that are wishing you well...please know you are not alone..although maybe you feel like you are...if you need to vent..complain..or just talk about stuff that isnt even lyme related...please feel free to email me..or for that matter call me...we all need someone to lean on..feel free to lean
ReplyDeleteAmbor,
ReplyDeleteMy brother Jim and I follow you. I know we aren't at your side physically but in spirit we are. I know there isn't a single word that can be said that makes it all OK. I can only say stay focused on one day, one minute at a time. Keep taking one step forward. We cannot foretell the future - no crystal balls. Only by doing this however do you give the opportunity for a breakthrough.
Steve Prefontaine's quote comes to my mind: " to give less than your best is to waste the gift." You are the gift... keep giving your best. You help others by sharing so much. Keep on keeping on.
Sending good thoughts and healing thoughts...
Coach Dean
hi my name is Kayleigh... i'm from the lyme area and have had lyme diseas for just around the same amount of time for you... unfotunately my doctors just dont seem to get it! i'm scared and need help. i'm on my second rund of 100 mg doxycycline and my symptoms continue to get worse. the anxiety and brain fog is almost unbearable. somedays i dont want to get out of bed and wish it would all just end. no one around me seems to understand... please contact me!!! E-mail= KLee3441@aim.com
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